Jacquie first started showing symptoms of the condition, which is a form of dementia, 10 years ago - but her confusion and emotional changes were originally misdiagnosed as menopause.
1. 'This was taken in 2005 or so. At this point, Jacquie had Pick's Disease, but it had been misdiagnosed as menopause. She would be about 48 here.'

"Dad called me at work and told me to Skype him as soon as Zoe and I got home - didn’t matter what time. The call was very blunt. He said: 'Your mother is going to die.'
2. 'On the beach, around 2010. Lots of Jacquie around. She can't remember too much though.'

"The thing with Pick’s disease is that it has some very obvious stages. It’s always the stages that get to me the hardest, whether it’s paranoia, or forgetting names, forgetting how to eat, etc.
3. 'Riding on the back of dad's bike was one of her favourite things to do. This had to stop in 2011, when a paranoia attack nearly caused an accident.'

"She also stopped being able to eat solid foods and is now on pureed. It’s like she has aged backwards.
4. 'Beach-time walks. Weight is falling off. Conversation is non-existent.'

"I go down to Batemans Bay (where my parents live) to visit every six weeks or so. I think Zoe finds it harder, being a new mother and not having her own to guide her.
5. 'The birth of her first grandchild. She had been looking forward to being a grandmother for years.'

"And that attitude is one of doing what’s best, being easy on yourself, and just getting on with it.
6. 'Still knows how to party. #yolo.'

In a short film Jake made documenting his mother's illness, his sister Zoe said: "Having become a mother, knowing that my little boy won't know what she was like has made me really want to be able to tell him about her.
7. 'Cuddles with her 14-month-old grandson. He's very careful with her, knows she's special.'

In the same video, Jake says: "If she was herself for the next two minutes, I would tell her I loved her, I'm sorry this is happening to you, i'm sorry you're not around to see who I've become.
"Then I suppose I would ask if she knows anything that is happening to her."
8. 'She doesn't walk very much anymore. And she has lost a large amount of weight.'

"I haven't had a conversation with her in years where she's actually said anything that's made sense."
9. 'Fun times at the beach. She's 58 here. Her eyes aren't always open, and if they are, she's staring into the void.'

10. 'Sometimes we'll move her to beanbags on the floor.'

Daughter Zoe said: "It's what we pray for every day. That she can just go home and be at rest. And that the rest of us can have some closure."
11. 'She still smiles and laughs sometimes. I have no idea why. I really hope she dies soon.'

"The silver-lining of this illness is that it has brought us closer together as a family, and it has given us a chance to love Jacquie the way she loved us."